Kaitlyn Loke

My story

Hi! My name is Kaitlyn.

When I was 18 months old, my family learned that I have BPAN (Beta-Propeller Protein-Associated Neurodegeneration), a very rare genetic neurological disorder that affects fewer than 2,000 people in the world. BPAN can affect how kids learn, move, communicate, and grow, which means my path may look a little different from other kids.

But I’m still a kid who loves the fun things in life. I love music, books, and food, and my family celebrates all the things that make me happy.

Over the past year, I’ve been working really hard and learning so many new skills. My family celebrates every step forward with me. Along the way, the doctors, nurses, and specialists at BC Children’s Hospital have been helping take care of me and cheering me on. They support my family, answer our questions, and help make sure I have the care I need.

BC Children’s Hospital helps kids like me who have complex and rare conditions. They help families navigate big challenges and make sure children have the best possible support.

My family is running to raise money for BC Children’s Hospital to say thank you and to help other kids get the same amazing care.

Thank you for supporting my run and cheering me on!